An interactive computer software program called FaceSay™ has been shown to improve the ability of children with autism spectrum disorders (ASD) to recognize faces, facial expressions and emotions, according to the results of a study conducted by psychologists at the University of Alabama at Birmingham (UAB). FaceSay™, created by Symbionica L.L.C., features interactive games that let children with ASD practice recognizing the facial expressions of an avatar, or software “puppet.” Specifically, the computer games teach the children where to look for facial cues such as an eye gaze or a facial expression.
The study found that the children with Asperger Syndrome who used the FaceSay™ program made significant improvements in their ability to read facial expressions. The children with autism made less improvement. Children in both the autism and Asperger groups, however, both improved their ability to recognize emotions.
Specifically, the children with autism who used FaceSay™ averaged a mean score of 14.8 on a facial recognition test. The control group averaged 12.8. The children with Asperger Syndrome scored much higher with an average score of 18.4 compared to 15.4 by the control group.
On an emotion recognition skills test, the children with autism who used FaceSay™ scored an average of 6.53. The control group’s average score was 5.2. The children with Asperger Syndrome had a mean test score of 8.7 compared with the control group score of 6.79. UAB doctoral student Maria Hopkins, Ph.D., and UAB associate professor of psychology Fred Biasini, Ph.D., conducted the study.
Autism spectrum disorder includes a range of developmental disorders such as autism, Asperger Syndrome and other pervasive developmental disorders. Children with ASD often avoid eye contact with others, which prevents them from perceiving and understanding the emotions of others. Many have problems remembering faces.
Hopkins and Biasini tested 25 children with autism and 24 children with Asperger Syndrome. The children ranged in age from 6 to 15, with an average age of 10 years. The group consisted of 44 boys and five girls. The computer training sessions were held twice a week for at least six weeks for an average of 20 minutes each session. The software featured three interactive games.
Psychologists at UAB plan to conduct more studies to assess the longtime effects of the FaceSay™ intervention.
The study’s results were presented recently at a meeting of the Association for Psychological Science.
Sunday, February 22, 2009
Surprising Language Abilities In Children With Autism
What began as an informal presentation by a clinical linguist to a group of philosophers, has led to some surprising discoveries about the communicative language abilities of people with autism.
Several years back, Robert Stainton, now a philosophy professor at The University of Western Ontario, attended a presentation by his long-time friend Jessica de Villiers, a clinical linguist now at the University of British Columbia. The topic was Autism Spectrum Disorder (ASD). De Villiers explained that many individuals with ASD have significant difficulties with what linguists call "pragmatics." That is, people with ASD often have difficulty using language appropriately in social situations. They do not make appropriate use of context or knowledge of what it would be "reasonable to say." Most glaringly, many speakers with ASD have immense trouble understanding metaphor, irony, sarcasm, and what might be intimated or presumed, but not stated.
Drawing on his philosophical training, however, Stainton noticed less-than-obvious pragmatic abilities at work in de Villiers' examples, which were drawn from transcripts of conversations with 42 speakers with ASD -- abilities that had been missed by clinicians.
Thus began research to more clearly understand and define the conversational abilities and challenges of people with Autism Spectrum Disorder (ASD). Stainton and de Villiers' research, in collaboration with Peter Szatmari, a clinical psychiatrist at McMaster University, has shown that indeed, many individuals with ASD do have "a rich array of pragmatic abilities."
These researchers do not contest the well-established claim that people with ASD have difficulty with non-literal pragmatics, such as metaphors ("Juliet is the sun") or irony/sarcasm ("Boy, is that a good idea"). They have, however, found that many speakers with ASD do not show the same difficulty with literal pragmatics. An example is the phrase, "I took the subway north" from a transcript of a conversation with a research participant with ASD. The use of the word "the" could indicate there is only one subway in existence going north. "The subway" could also be referring to a subway car, a subway system or a subway tunnel. Taking account of the context and the listener's expectations, however, the individual using the phrase was able to convey the specific meaning he intended. That is, he used pragmatics effectively.
In short, Stainton and his colleagues produced surprising evidence to show that speakers with ASD use and understand pragmatics in cases of literal talk, as in the subway example.
Stainton, who is also Acting Associate Dean of Research in the Faculty of Arts and Humanities at Western, says, "It is especially gratifying and encouraging, because this is an Arts and Humanities contribution to clinical research. Without a philosophical perspective, this discovery might not have been made."
Related research allowed de Villiers and Szatmari to develop a rating scale of pragmatic abilities that can be used in the clinical assessment of people with ASD. Stainton says, "In the short term, their new tool will help identify where an individual fits on that spectrum. In the longer term, however, by making use of recent results in philosophy of language, it may contribute to our theoretical understanding of the boundary between knowledge of the meanings of words, and non-linguistic abilities -- specifically pragmatics."
Stainton believes that both clinicians who work with people with ASD, and language theorists who are interested in pragmatics for philosophical reasons, will find these results striking.
ASD affects approximately one in 165 people. The results of the research, conducted from a study of 42 children with autism and Asperger's Syndrome, has been published in the journal, Midwest Studies in Philosophy.
Several years back, Robert Stainton, now a philosophy professor at The University of Western Ontario, attended a presentation by his long-time friend Jessica de Villiers, a clinical linguist now at the University of British Columbia. The topic was Autism Spectrum Disorder (ASD). De Villiers explained that many individuals with ASD have significant difficulties with what linguists call "pragmatics." That is, people with ASD often have difficulty using language appropriately in social situations. They do not make appropriate use of context or knowledge of what it would be "reasonable to say." Most glaringly, many speakers with ASD have immense trouble understanding metaphor, irony, sarcasm, and what might be intimated or presumed, but not stated.
Drawing on his philosophical training, however, Stainton noticed less-than-obvious pragmatic abilities at work in de Villiers' examples, which were drawn from transcripts of conversations with 42 speakers with ASD -- abilities that had been missed by clinicians.
Thus began research to more clearly understand and define the conversational abilities and challenges of people with Autism Spectrum Disorder (ASD). Stainton and de Villiers' research, in collaboration with Peter Szatmari, a clinical psychiatrist at McMaster University, has shown that indeed, many individuals with ASD do have "a rich array of pragmatic abilities."
These researchers do not contest the well-established claim that people with ASD have difficulty with non-literal pragmatics, such as metaphors ("Juliet is the sun") or irony/sarcasm ("Boy, is that a good idea"). They have, however, found that many speakers with ASD do not show the same difficulty with literal pragmatics. An example is the phrase, "I took the subway north" from a transcript of a conversation with a research participant with ASD. The use of the word "the" could indicate there is only one subway in existence going north. "The subway" could also be referring to a subway car, a subway system or a subway tunnel. Taking account of the context and the listener's expectations, however, the individual using the phrase was able to convey the specific meaning he intended. That is, he used pragmatics effectively.
In short, Stainton and his colleagues produced surprising evidence to show that speakers with ASD use and understand pragmatics in cases of literal talk, as in the subway example.
Stainton, who is also Acting Associate Dean of Research in the Faculty of Arts and Humanities at Western, says, "It is especially gratifying and encouraging, because this is an Arts and Humanities contribution to clinical research. Without a philosophical perspective, this discovery might not have been made."
Related research allowed de Villiers and Szatmari to develop a rating scale of pragmatic abilities that can be used in the clinical assessment of people with ASD. Stainton says, "In the short term, their new tool will help identify where an individual fits on that spectrum. In the longer term, however, by making use of recent results in philosophy of language, it may contribute to our theoretical understanding of the boundary between knowledge of the meanings of words, and non-linguistic abilities -- specifically pragmatics."
Stainton believes that both clinicians who work with people with ASD, and language theorists who are interested in pragmatics for philosophical reasons, will find these results striking.
ASD affects approximately one in 165 people. The results of the research, conducted from a study of 42 children with autism and Asperger's Syndrome, has been published in the journal, Midwest Studies in Philosophy.
Saturday, February 21, 2009
Making headway - With work, 3-year-old showing improvement
RONAN - The little boy works so hard to put the 12-piece jigsaw puzzle together. Watching him concentrate as he twists the pieces round and round, searching for two that will interlock, borders on nerve-wracking.
It's his first time with this particular puzzle. His frustration grows incrementally with your anxiety, and occasionally he emits an “Ee-oh-ee-oh-ee-oh” sound that, his mother is sure, is his version of a string of cuss words that would make a sailor blush.
Slowly but surely the “Snow White” scene comes together, until there is just one piece left to complete the picture.
Please Install Flash
He's so close, so many times, and you want with all your heart to reach out and help him maneuver it that last fraction of an inch, so that it will fall into place for him.
But you don't.
You can't.
It's fine to help him, but he needs to learn to ask for help before you give it to him.
So until he does, the piece is twisted and pushed, twisted and pushed, the “Ee-oh-ee-oh-ee-oh” growing louder.
Suddenly, it's there, perfectly positioned. Decker Cote, age 3 1/2, shoves down on it and it locks in with the rest of the puzzle.
His eyes light up. Every adult in the room screams as if their underdog had just won the Super Bowl.
His teacher, Holly Porter, gives him a high five, then lifts the giggling boy and throws him into the air.
Back on the ground, Decker runs to his mother, Charlie Cote, who picks him up, nuzzles him, and tells him, “You're so smart. I'm so proud of you.”
In reality, it's only been six or seven minutes since Decker started the puzzle, but it seems like a lifetime.
And if you want to know why everyone is so excited about every little task that Decker Cote successfully completes, you need only to have known the little boy 10 short months ago.
Will and Charlie Cote's young son would foam at the mouth, bite himself until he drew blood, tear his hair out by the fistful, choke himself until he would vomit 20 times in the space of five minutes.
Decker Cote suffers from autism.
“It was so disturbing,” Charlie says. “All you could do was hold his arms by his side while he screamed, because you didn't know what else to do.”
Trips to the grocery store were a nightmare - the boy would end up underneath the shopping cart, his little fingers wrapped around the cart's bottom in a death grip, screaming bloody murder all the way. The family - which includes Decker's older brother Carter, now 6, and little sister Timber, who is 2 - quickly gave up on any outing that wasn't necessary.
The boy would sit in front of a kitchen cupboard and slam the door repeatedly for hours on end if you let him, finding some strange sort of comfort in the “bam” sound that echoed back at him endlessly.
Make him stop and he'd throw a skin-biting, hair-pulling, screaming and crying fit of monumental proportions.
The longest tantrum reached 17 consecutive hours.
“As a family, we fell off the face of the earth,” Charlie says. “We couldn't even go to dinner at my folks' house - any change in Decker's world turned ours upside-down for two to three days.”
It hadn't always been like this. For the first 12 months of his life there was nothing abnormal about Decker's behavior or development.
“He had speech as an infant,” Charlie says, “and just lost it. It was babbling, his own language, but it was there - ‘nana' for food; ‘hot,' he said it and knew what it meant, whether it was food he was eating or when I put him in the tub. He called his sister ‘Nice' because we were always saying, ‘Be nice to the baby.' ”
Just as important, Charlie says, Decker was “totally engaged” as an infant, smiling and giggling through games like “peek-a-boo.”
Then, over two to three months, it all went away, vanishing the way a setting sun leaves a world pitch black.
“He not only quit using the words he had developed, he didn't know what we were talking about when we used them,” Charlie says.
Most disturbing was the baby's refusal to look at his mother or father, or anyone else.
“You couldn't even force him to,” Charlie says. “If you tried to make him make eye contact, he'd cry like you'd slammed a door on his hand.”
It was a gradual slide. His parents were as confused as they were concerned.
“Will would say, ‘Is that right?' ” Charlie says. “Kids can be quirky, and we weren't sure. Timber was a new baby - was he just jealous? But it started getting to be too many things, there were too many signs.”
Decker Cote was disappearing into his own, strange, unknown world.
One of Will and Charlie's first thoughts was that Decker might be losing, or have lost, his hearing. It would explain why he wasn't talking anymore.
At the Confederated Salish and Kootenai Tribal Health Clinic, Eve Tolbert tested the not-yet-2-year-old.
“Decker was way out of hand, and I think she knew,” Charlie says of Tolbert. “I think it's the first time I heard anyone say the word ‘autism.' ”
A trip to the Child Development Center in Missoula for an autism spectrum disorder evaluation was next, but the Cotes discovered there was a long waiting list to get in.
“It's a bummer, because early intervention is critical,” Charlie says. “We were put on a call list. We were quite certain by this time it was autism, but I wanted to be wrong so bad you can't believe it. We weren't craving the diagnosis, but you have to have it before you can get services.”
It took six months to get in, but once there, Charlie says the team that diagnosed Decker with autism was exceptional. William Cook, the doctor who broke the news to Will and Charlie, was “just great,” she says. “There was nothing clinical about it. He was such a human being. You could tell it just broke his heart to tell us.”
One of the possible reasons?
“I've often thought, ‘What if Decker had been diagnosed with cancer?' ” Charlie says. “That would be terrible, too, but at least with a cancer diagnosis they can tell you what to do - you do this, you do that, you get sent to Seattle, there are actions you take. When the diagnosis is autism, there is no game plan. You've got to go find it.”
And so Charlie Cote did. In fact, she had started before the official diagnosis was delivered.
Her one rule: Avoid the Internet.
“You can get eaten up by all the information on the Internet,” she says. “Try this diet, use these biomedical treatments, try this drug or that injection. I wanted to find something that's been done for a while, and that works. I didn't want to experiment on him. It's my child.”
Her best source, Charlie says, was a book, “Facing Autism,” by Lynn Hamilton.
“All your homework done by a mom who's gone ahead of you,” she explains.
That helped lead her to the work of Dr. O. Ivar Lovaas, a UCLA professor with four decades invested in autism research. The Lovaas approach to Applied Behavior Analysis, Charlie says, is simple. It rewards and praises appropriate behavior in an autistic child and ignores irresponsible behavior.
If the child completes a task successfully - it can be as simple as placing a block in a bucket - they “get a big party,” Charlie says. “It can be licking a sucker, or getting tickled, or playing with a toy they like, or throwing them into the air and swinging them around.”
If they don't do it, there's no punishment - but there's no party, either.
It does sound simple, and at its core, it is.
But each child with autism is different, and there is a lot of work involved in getting a tortured child like Decker from where he was last March, to where he is today.
Their first step was to contact Steven Michalski, founder and director of the Redwood Learning Center in Sandy, Utah.
Michalski had studied under Lovaas at UCLA.
Twenty-eight-year-old Will Cote and his father operate two Mission Valley businesses, a welding and fabricating shop and Cross Diamond Boom, a crane service. Will and Charlie also have a small cow-and-calf operation on their ranch west of Ronan, plus run the ranch next door that belonged to Charlie's parents after her father passed away.
To several full-time jobs the Cotes added another: Recovering their son from the grips of autism.
There are arguments about whether autism is a disease or a disorder, and arguments about how to treat it, but the Cotes chose the route with 40 years to back it up.
Will remodeled his workshop on the ranch into a classroom for Decker. Charlie hit up dozens of local businesses for help, organized a fundraising spaghetti feed that drew so many people from the community - 600 - that both Ronan's grocery stores were emptied of their hamburger and sauce before the night was over, and lined up a group of friends, family and neighbors who would become Decker's teachers.
Michalski traveled from Utah to conduct a three-day workshop to teach the teachers how to teach Decker.
Most of the group was stunned when Michalski began working with the boy, then 2 1/2, for the first time, and they saw what they were getting into.
“Decker did everything but pull a knife on Steve,” Holly Porter says. “He was biting and hitting and scratching and kicking, and the tantrum seemed to last for days.”
“To Will and I it was nothing we hadn't seen every day for a year,” Charlie says. “All the teachers were crying, but to us that day was a launching pad for getting our son back.”
Michalski delivered an important message that day to Decker's new battalion of teachers, which include Porter, Marge Coursen, RaLynn Brown, Joanne Ploskunak, Jody Jones and Lisa Jones-Park.
“Don't react to his behavior, stay neutral,” Coursen says. “Keep him in his chair working - if he's doing his ring-stacker, physically take his hand and make him keep putting rings on it.”
“He showed us all that we're battling autism, not Decker,” Charlie says.
The therapy demands a lot from the 3-year-old.
It lasts eight hours a day. A pair of three-hour sessions in the home-built classroom on the ranch are interrupted at midday by two hours in town at Ronan's Head Start program, which Charlie says has gone “above and beyond” to help.
Even when school's out, it's not, not really.
The same sort of exercises and routines from his daytime teachers continue on into the evenings, on weekends, every day of the year with his parents.
Charlie and Will had Decker into the classroom on Christmas Day, New Year's Eve.
“The autism doesn't take a day off,” Charlie explains, “so neither can we.”
But the progress has been stunning to them. Charlie says 40 percent to 50 percent of children diagnosed with autism, if in the right range on the spectrum chart and treated early enough with ABA, can recover huge amounts of their speech and social skills.
Consider the child jigsaw puzzles. When they first started working the puzzles, the puzzles were whole save for one piece that the teachers would remove and hand to Decker.
That's all he could handle just a few short months ago. One piece, and it took him as long to figure it out as it does to do an entire puzzle from scratch now.
The battery of teachers painstakingly charts how he did on each exercise, and how much time it took.
Once a week, they gather with Charlie for a two-hour session to plan out the coming week.
Michalski flies up from Utah every few weeks to read over the charts, work with Decker and offer directions for his therapy. His services cost $150 an hour plus expenses, and $75 for phone or e-mail communication from Utah.
But Charlie says Michalski never charges for conversations that last just a few minutes, or simple e-mails. He's fine with sleeping in the bunkhouse next door on her mother's property, and many of his flights have been covered by folks in the Mission Valley who have donated frequent-flier miles.
The Cotes' goal is for Decker to recover enough that they can enroll him in a regular kindergarten class by the time he's 6.
Their son's autism has been “quite possibly the biggest challenge we will face in our lifetimes,” Charlie and Will say.
But the puzzle is coming together.
Day by day, Decker Cote is emerging from a terrifying world not of his making.
Piece by piece, Will and Charlie are getting their son back.
Measure requires insurers to provide coverage for autism
By VINCE DEVLIN of the Missoulian
RONAN - Will and Charlie Cote thrust their plight - and that of their 3 1/2-year-old son, Decker - into the public eye last week, when they traveled to Helena to testify in favor of Senate Bill 234.
Sponsored by Sen. Kim Gillan, D-Billings, “Brandon's Bill” would require insurance companies to provide coverage for the diagnosis and treatment of autism.
Eight states - Arizona, Florida, Louisiana, Illinois, Indiana, Pennsylvania, South Carolina and Texas - have enacted autism insurance reform legislation, and Montana is one of several more considering similar bills during the current session.
According to Autism Speaks, a national organization that backs the legislation, most states do not require private insurance companies to cover even essential autism treatments and services.
“In the absence of coverage, families often pay as much as they can out of pocket for services that can cost upward of $50,000 per year,” Autism Speaks says. “In the process, many risk their homes and the educations of their unaffected children - essentially mortgaging their entire futures.”
To Charlie Cote, it makes no more sense than it would be to allow health insurance companies to refuse to pay for chemotherapy for a person covered by insurance and diagnosed with cancer.
“We're trying to save our son's life,” she says of the aggressive Applied Behavior Analysis approach they've elected to take with Decker (see accompanying story).
It costs the Cotes $4,000 to $5,000 a month.
“Decker,” she told the committee, “has begun a beautiful transformation. A year ago, he was in discontent 90 percent of his day. He would tantrum for hours on end. Decker went 18 months without sleeping a night through. When he was sleepless he was injuring himself by pulling his own hair out, biting through his own skin, choking and gagging himself to vomit multiple times in a matter of minutes. He lost all speech and all eye contact (and) withdrew into this unpredictable world.”
“These are not moments pulled from our darkest days,” Charlie went on. “This was every day. Our family changed. We became a family with autism.”
ABA, one of the treatments SB 234 would require insurance companies to cover, has made such a huge difference in the life of Decker and his family, Charlie says, that it's hard to put into words.
The Cotes are lucky, she says, to have family and friends and neighbors - really, the entire community of Ronan - to lean on for help in paying for and delivering to Decker the care he needs.
“When we were in Helena,” she says, “I couldn't help thinking what it would be like for a 19-year-old single mom to try to deal with what we're dealing with.”
SB 234 would require insurance companies to cover diagnosis, rehabilitative, pharmacy, psychiatric, psychological and therapeutic care and ABA treatments, up to $50,000 a year.
“We are in favor (of SB 234) not only for the benefit of our own son, but for every child that follows behind him,” Cote told legislators. “Unfortunately, there will be many. Let us as a state embrace them, and give them the treatment that they need and deserve.”
It's his first time with this particular puzzle. His frustration grows incrementally with your anxiety, and occasionally he emits an “Ee-oh-ee-oh-ee-oh” sound that, his mother is sure, is his version of a string of cuss words that would make a sailor blush.
Slowly but surely the “Snow White” scene comes together, until there is just one piece left to complete the picture.
Please Install Flash
He's so close, so many times, and you want with all your heart to reach out and help him maneuver it that last fraction of an inch, so that it will fall into place for him.
But you don't.
You can't.
It's fine to help him, but he needs to learn to ask for help before you give it to him.
So until he does, the piece is twisted and pushed, twisted and pushed, the “Ee-oh-ee-oh-ee-oh” growing louder.
Suddenly, it's there, perfectly positioned. Decker Cote, age 3 1/2, shoves down on it and it locks in with the rest of the puzzle.
His eyes light up. Every adult in the room screams as if their underdog had just won the Super Bowl.
His teacher, Holly Porter, gives him a high five, then lifts the giggling boy and throws him into the air.
Back on the ground, Decker runs to his mother, Charlie Cote, who picks him up, nuzzles him, and tells him, “You're so smart. I'm so proud of you.”
In reality, it's only been six or seven minutes since Decker started the puzzle, but it seems like a lifetime.
And if you want to know why everyone is so excited about every little task that Decker Cote successfully completes, you need only to have known the little boy 10 short months ago.
Will and Charlie Cote's young son would foam at the mouth, bite himself until he drew blood, tear his hair out by the fistful, choke himself until he would vomit 20 times in the space of five minutes.
Decker Cote suffers from autism.
“It was so disturbing,” Charlie says. “All you could do was hold his arms by his side while he screamed, because you didn't know what else to do.”
Trips to the grocery store were a nightmare - the boy would end up underneath the shopping cart, his little fingers wrapped around the cart's bottom in a death grip, screaming bloody murder all the way. The family - which includes Decker's older brother Carter, now 6, and little sister Timber, who is 2 - quickly gave up on any outing that wasn't necessary.
The boy would sit in front of a kitchen cupboard and slam the door repeatedly for hours on end if you let him, finding some strange sort of comfort in the “bam” sound that echoed back at him endlessly.
Make him stop and he'd throw a skin-biting, hair-pulling, screaming and crying fit of monumental proportions.
The longest tantrum reached 17 consecutive hours.
“As a family, we fell off the face of the earth,” Charlie says. “We couldn't even go to dinner at my folks' house - any change in Decker's world turned ours upside-down for two to three days.”
It hadn't always been like this. For the first 12 months of his life there was nothing abnormal about Decker's behavior or development.
“He had speech as an infant,” Charlie says, “and just lost it. It was babbling, his own language, but it was there - ‘nana' for food; ‘hot,' he said it and knew what it meant, whether it was food he was eating or when I put him in the tub. He called his sister ‘Nice' because we were always saying, ‘Be nice to the baby.' ”
Just as important, Charlie says, Decker was “totally engaged” as an infant, smiling and giggling through games like “peek-a-boo.”
Then, over two to three months, it all went away, vanishing the way a setting sun leaves a world pitch black.
“He not only quit using the words he had developed, he didn't know what we were talking about when we used them,” Charlie says.
Most disturbing was the baby's refusal to look at his mother or father, or anyone else.
“You couldn't even force him to,” Charlie says. “If you tried to make him make eye contact, he'd cry like you'd slammed a door on his hand.”
It was a gradual slide. His parents were as confused as they were concerned.
“Will would say, ‘Is that right?' ” Charlie says. “Kids can be quirky, and we weren't sure. Timber was a new baby - was he just jealous? But it started getting to be too many things, there were too many signs.”
Decker Cote was disappearing into his own, strange, unknown world.
One of Will and Charlie's first thoughts was that Decker might be losing, or have lost, his hearing. It would explain why he wasn't talking anymore.
At the Confederated Salish and Kootenai Tribal Health Clinic, Eve Tolbert tested the not-yet-2-year-old.
“Decker was way out of hand, and I think she knew,” Charlie says of Tolbert. “I think it's the first time I heard anyone say the word ‘autism.' ”
A trip to the Child Development Center in Missoula for an autism spectrum disorder evaluation was next, but the Cotes discovered there was a long waiting list to get in.
“It's a bummer, because early intervention is critical,” Charlie says. “We were put on a call list. We were quite certain by this time it was autism, but I wanted to be wrong so bad you can't believe it. We weren't craving the diagnosis, but you have to have it before you can get services.”
It took six months to get in, but once there, Charlie says the team that diagnosed Decker with autism was exceptional. William Cook, the doctor who broke the news to Will and Charlie, was “just great,” she says. “There was nothing clinical about it. He was such a human being. You could tell it just broke his heart to tell us.”
One of the possible reasons?
“I've often thought, ‘What if Decker had been diagnosed with cancer?' ” Charlie says. “That would be terrible, too, but at least with a cancer diagnosis they can tell you what to do - you do this, you do that, you get sent to Seattle, there are actions you take. When the diagnosis is autism, there is no game plan. You've got to go find it.”
And so Charlie Cote did. In fact, she had started before the official diagnosis was delivered.
Her one rule: Avoid the Internet.
“You can get eaten up by all the information on the Internet,” she says. “Try this diet, use these biomedical treatments, try this drug or that injection. I wanted to find something that's been done for a while, and that works. I didn't want to experiment on him. It's my child.”
Her best source, Charlie says, was a book, “Facing Autism,” by Lynn Hamilton.
“All your homework done by a mom who's gone ahead of you,” she explains.
That helped lead her to the work of Dr. O. Ivar Lovaas, a UCLA professor with four decades invested in autism research. The Lovaas approach to Applied Behavior Analysis, Charlie says, is simple. It rewards and praises appropriate behavior in an autistic child and ignores irresponsible behavior.
If the child completes a task successfully - it can be as simple as placing a block in a bucket - they “get a big party,” Charlie says. “It can be licking a sucker, or getting tickled, or playing with a toy they like, or throwing them into the air and swinging them around.”
If they don't do it, there's no punishment - but there's no party, either.
It does sound simple, and at its core, it is.
But each child with autism is different, and there is a lot of work involved in getting a tortured child like Decker from where he was last March, to where he is today.
Their first step was to contact Steven Michalski, founder and director of the Redwood Learning Center in Sandy, Utah.
Michalski had studied under Lovaas at UCLA.
Twenty-eight-year-old Will Cote and his father operate two Mission Valley businesses, a welding and fabricating shop and Cross Diamond Boom, a crane service. Will and Charlie also have a small cow-and-calf operation on their ranch west of Ronan, plus run the ranch next door that belonged to Charlie's parents after her father passed away.
To several full-time jobs the Cotes added another: Recovering their son from the grips of autism.
There are arguments about whether autism is a disease or a disorder, and arguments about how to treat it, but the Cotes chose the route with 40 years to back it up.
Will remodeled his workshop on the ranch into a classroom for Decker. Charlie hit up dozens of local businesses for help, organized a fundraising spaghetti feed that drew so many people from the community - 600 - that both Ronan's grocery stores were emptied of their hamburger and sauce before the night was over, and lined up a group of friends, family and neighbors who would become Decker's teachers.
Michalski traveled from Utah to conduct a three-day workshop to teach the teachers how to teach Decker.
Most of the group was stunned when Michalski began working with the boy, then 2 1/2, for the first time, and they saw what they were getting into.
“Decker did everything but pull a knife on Steve,” Holly Porter says. “He was biting and hitting and scratching and kicking, and the tantrum seemed to last for days.”
“To Will and I it was nothing we hadn't seen every day for a year,” Charlie says. “All the teachers were crying, but to us that day was a launching pad for getting our son back.”
Michalski delivered an important message that day to Decker's new battalion of teachers, which include Porter, Marge Coursen, RaLynn Brown, Joanne Ploskunak, Jody Jones and Lisa Jones-Park.
“Don't react to his behavior, stay neutral,” Coursen says. “Keep him in his chair working - if he's doing his ring-stacker, physically take his hand and make him keep putting rings on it.”
“He showed us all that we're battling autism, not Decker,” Charlie says.
The therapy demands a lot from the 3-year-old.
It lasts eight hours a day. A pair of three-hour sessions in the home-built classroom on the ranch are interrupted at midday by two hours in town at Ronan's Head Start program, which Charlie says has gone “above and beyond” to help.
Even when school's out, it's not, not really.
The same sort of exercises and routines from his daytime teachers continue on into the evenings, on weekends, every day of the year with his parents.
Charlie and Will had Decker into the classroom on Christmas Day, New Year's Eve.
“The autism doesn't take a day off,” Charlie explains, “so neither can we.”
But the progress has been stunning to them. Charlie says 40 percent to 50 percent of children diagnosed with autism, if in the right range on the spectrum chart and treated early enough with ABA, can recover huge amounts of their speech and social skills.
Consider the child jigsaw puzzles. When they first started working the puzzles, the puzzles were whole save for one piece that the teachers would remove and hand to Decker.
That's all he could handle just a few short months ago. One piece, and it took him as long to figure it out as it does to do an entire puzzle from scratch now.
The battery of teachers painstakingly charts how he did on each exercise, and how much time it took.
Once a week, they gather with Charlie for a two-hour session to plan out the coming week.
Michalski flies up from Utah every few weeks to read over the charts, work with Decker and offer directions for his therapy. His services cost $150 an hour plus expenses, and $75 for phone or e-mail communication from Utah.
But Charlie says Michalski never charges for conversations that last just a few minutes, or simple e-mails. He's fine with sleeping in the bunkhouse next door on her mother's property, and many of his flights have been covered by folks in the Mission Valley who have donated frequent-flier miles.
The Cotes' goal is for Decker to recover enough that they can enroll him in a regular kindergarten class by the time he's 6.
Their son's autism has been “quite possibly the biggest challenge we will face in our lifetimes,” Charlie and Will say.
But the puzzle is coming together.
Day by day, Decker Cote is emerging from a terrifying world not of his making.
Piece by piece, Will and Charlie are getting their son back.
Measure requires insurers to provide coverage for autism
By VINCE DEVLIN of the Missoulian
RONAN - Will and Charlie Cote thrust their plight - and that of their 3 1/2-year-old son, Decker - into the public eye last week, when they traveled to Helena to testify in favor of Senate Bill 234.
Sponsored by Sen. Kim Gillan, D-Billings, “Brandon's Bill” would require insurance companies to provide coverage for the diagnosis and treatment of autism.
Eight states - Arizona, Florida, Louisiana, Illinois, Indiana, Pennsylvania, South Carolina and Texas - have enacted autism insurance reform legislation, and Montana is one of several more considering similar bills during the current session.
According to Autism Speaks, a national organization that backs the legislation, most states do not require private insurance companies to cover even essential autism treatments and services.
“In the absence of coverage, families often pay as much as they can out of pocket for services that can cost upward of $50,000 per year,” Autism Speaks says. “In the process, many risk their homes and the educations of their unaffected children - essentially mortgaging their entire futures.”
To Charlie Cote, it makes no more sense than it would be to allow health insurance companies to refuse to pay for chemotherapy for a person covered by insurance and diagnosed with cancer.
“We're trying to save our son's life,” she says of the aggressive Applied Behavior Analysis approach they've elected to take with Decker (see accompanying story).
It costs the Cotes $4,000 to $5,000 a month.
“Decker,” she told the committee, “has begun a beautiful transformation. A year ago, he was in discontent 90 percent of his day. He would tantrum for hours on end. Decker went 18 months without sleeping a night through. When he was sleepless he was injuring himself by pulling his own hair out, biting through his own skin, choking and gagging himself to vomit multiple times in a matter of minutes. He lost all speech and all eye contact (and) withdrew into this unpredictable world.”
“These are not moments pulled from our darkest days,” Charlie went on. “This was every day. Our family changed. We became a family with autism.”
ABA, one of the treatments SB 234 would require insurance companies to cover, has made such a huge difference in the life of Decker and his family, Charlie says, that it's hard to put into words.
The Cotes are lucky, she says, to have family and friends and neighbors - really, the entire community of Ronan - to lean on for help in paying for and delivering to Decker the care he needs.
“When we were in Helena,” she says, “I couldn't help thinking what it would be like for a 19-year-old single mom to try to deal with what we're dealing with.”
SB 234 would require insurance companies to cover diagnosis, rehabilitative, pharmacy, psychiatric, psychological and therapeutic care and ABA treatments, up to $50,000 a year.
“We are in favor (of SB 234) not only for the benefit of our own son, but for every child that follows behind him,” Cote told legislators. “Unfortunately, there will be many. Let us as a state embrace them, and give them the treatment that they need and deserve.”
Thursday, February 12, 2009
Vaccines don't cause autism, special court says
WASHINGTON – Vaccines aren't to blame for autism, a special federal court declared Thursday in a blow to thousands of families hoping to win compensation and to many more who are convinced of a connection.
The special masters who decided the case expressed sympathy for the families, some of whom have made emotional pleas describing their children's conditions, but the rulings were blunt: There's little if any evidence to support claims of a vaccine-autism link.
The evidence "is weak, contradictory and unpersuasive," concluded Special Master Denise Vowell. "Sadly, the petitioners in this litigation have been the victims of bad science conducted to support litigation rather than to advance medical and scientific understanding" of autism.
Science years ago reached the conclusion that there's no connection, but Thursday's rulings in a trio of cases still have far-reaching implications — offering reassurance to parents scared about vaccinating their babies because of a small but vocal anti-vaccine movement. Some vaccine-preventable diseases, including measles, are on the rise, and last fall a Minnesota baby who hadn't been vaccinated against meningitis died of that disease.
The special court represented a chance for vindication for families who blame vaccines for their children's autism. Known as "the people's court," the U.S. Court of Claims is different from many other courts: The families involved didn't have to prove the inoculations definitely caused the complex neurological disorder, just that they probably did.
More than 5,500 claims have been filed by families seeking compensation through the government's Vaccine Injury Compensation Program, and Thursday's rulings dealt with the first three test cases to settle which if any claims had merit. The first cases argued that a combination of the measles-mumps-rubella vaccine plus other shots triggered autism.
"I must decide this case not on sentiment but by analyzing the evidence," said Special Master George Hastings Jr., writing specifically about Michelle Cedillo of Yuma, Ariz., who is disabled with autism, inflammatory bowel disease and other disorders that her parents blame on a measles vaccine given at 15 months.
"Unfortunately, the Cedillos have been misled by physicians who are guilty, in my view, of gross medical misjudgment," Hastings concluded.
Attorneys for the families said they were disappointed and may appeal.
"There was certainly no scientific proof that vaccines caused autism, but that's not the standard; the standard is likelihood," said Kevin Conway of Boston who represented the Cedillos. "We thought our evidence was solid."
"Certainly those three families are discouraged with the ruling," added Tom Powers, a Portland, Ore., attorney overseeing all the claims. "It's a big step, it's a significant step but it's not the last step."
Indeed, the court's ruling will do little to change the minds of parents who believe vaccines have harmed their children, said the head of a consumer group that questions vaccine safety, the National Vaccine Information Center.
"I think it is a mistake to conclude that because these few test cases were denied compensation, that it's been decided vaccines don't play any role in regressive autism," said Barbara Loe Fisher, the center's president.
The court still must rule on additional cases that argue a different link — that vaccines that once carried the mercury-containing preservative thimerosal are to blame, if the mercury reached and damaged brain cells — and Powers said families making those claims remain hopeful. The court has given no timetable for a ruling.
But Thursday's rulings clearly gave great credence to numerous large studies that have looked for but not found any link between the measles vaccine, other vaccines and autism.
"Hopefully, the determination by the special masters will help reassure parents that vaccines do not cause autism," the Department of Health and Human Services said in a statement that pledged to continue research into possible causes and better treatments.
"It's a great day for science, it's a great day for America's children when the court rules in favor of science," said Dr. Paul Offit, an infectious disease expert at the Children's Hospital of Philadelphia and developer of a vaccine for rotavirus.
"A choice not to get a vaccine is not a risk-free choice," Offit added, pointing to recent outbreaks of vaccine-preventable diseases that authorities suspect are partly due to delayed or rejected vaccinations.
Autism is best known for impairing a child's ability to communicate and interact. Recent data suggest a 10-fold increase in autism rates over the past decade, although it's unclear how much of the surge reflects better diagnosis.
Worry about a vaccine link first arose in 1998 when a British physician, Dr. Andrew Wakefield, published a medical journal article linking a particular type of autism and bowel disease to the measles vaccine. The study was soon discredited, and British medical authorities now are investigating professional misconduct charges against Wakefield.
Then came questions about thimerosal, a preservative that manufacturers began removing from all vaccines given to infants in 2001. Today it is present only in certain formulations of the flu shot.
The special masters who decided the case expressed sympathy for the families, some of whom have made emotional pleas describing their children's conditions, but the rulings were blunt: There's little if any evidence to support claims of a vaccine-autism link.
The evidence "is weak, contradictory and unpersuasive," concluded Special Master Denise Vowell. "Sadly, the petitioners in this litigation have been the victims of bad science conducted to support litigation rather than to advance medical and scientific understanding" of autism.
Science years ago reached the conclusion that there's no connection, but Thursday's rulings in a trio of cases still have far-reaching implications — offering reassurance to parents scared about vaccinating their babies because of a small but vocal anti-vaccine movement. Some vaccine-preventable diseases, including measles, are on the rise, and last fall a Minnesota baby who hadn't been vaccinated against meningitis died of that disease.
The special court represented a chance for vindication for families who blame vaccines for their children's autism. Known as "the people's court," the U.S. Court of Claims is different from many other courts: The families involved didn't have to prove the inoculations definitely caused the complex neurological disorder, just that they probably did.
More than 5,500 claims have been filed by families seeking compensation through the government's Vaccine Injury Compensation Program, and Thursday's rulings dealt with the first three test cases to settle which if any claims had merit. The first cases argued that a combination of the measles-mumps-rubella vaccine plus other shots triggered autism.
"I must decide this case not on sentiment but by analyzing the evidence," said Special Master George Hastings Jr., writing specifically about Michelle Cedillo of Yuma, Ariz., who is disabled with autism, inflammatory bowel disease and other disorders that her parents blame on a measles vaccine given at 15 months.
"Unfortunately, the Cedillos have been misled by physicians who are guilty, in my view, of gross medical misjudgment," Hastings concluded.
Attorneys for the families said they were disappointed and may appeal.
"There was certainly no scientific proof that vaccines caused autism, but that's not the standard; the standard is likelihood," said Kevin Conway of Boston who represented the Cedillos. "We thought our evidence was solid."
"Certainly those three families are discouraged with the ruling," added Tom Powers, a Portland, Ore., attorney overseeing all the claims. "It's a big step, it's a significant step but it's not the last step."
Indeed, the court's ruling will do little to change the minds of parents who believe vaccines have harmed their children, said the head of a consumer group that questions vaccine safety, the National Vaccine Information Center.
"I think it is a mistake to conclude that because these few test cases were denied compensation, that it's been decided vaccines don't play any role in regressive autism," said Barbara Loe Fisher, the center's president.
The court still must rule on additional cases that argue a different link — that vaccines that once carried the mercury-containing preservative thimerosal are to blame, if the mercury reached and damaged brain cells — and Powers said families making those claims remain hopeful. The court has given no timetable for a ruling.
But Thursday's rulings clearly gave great credence to numerous large studies that have looked for but not found any link between the measles vaccine, other vaccines and autism.
"Hopefully, the determination by the special masters will help reassure parents that vaccines do not cause autism," the Department of Health and Human Services said in a statement that pledged to continue research into possible causes and better treatments.
"It's a great day for science, it's a great day for America's children when the court rules in favor of science," said Dr. Paul Offit, an infectious disease expert at the Children's Hospital of Philadelphia and developer of a vaccine for rotavirus.
"A choice not to get a vaccine is not a risk-free choice," Offit added, pointing to recent outbreaks of vaccine-preventable diseases that authorities suspect are partly due to delayed or rejected vaccinations.
Autism is best known for impairing a child's ability to communicate and interact. Recent data suggest a 10-fold increase in autism rates over the past decade, although it's unclear how much of the surge reflects better diagnosis.
Worry about a vaccine link first arose in 1998 when a British physician, Dr. Andrew Wakefield, published a medical journal article linking a particular type of autism and bowel disease to the measles vaccine. The study was soon discredited, and British medical authorities now are investigating professional misconduct charges against Wakefield.
Then came questions about thimerosal, a preservative that manufacturers began removing from all vaccines given to infants in 2001. Today it is present only in certain formulations of the flu shot.
Wednesday, January 14, 2009
Pre-natal test may detect autism
LONDON, Jan. 12 (UPI) -- British researchers say high levels of testosterone discovered during pre-natal testing may indicate a risk of autism.
Cambridge University scientists say the testosterone levels were determined using amniotic fluid removed from pregnant mothers through amniocentesis, which is used to detect Down syndrome in unborn infants, the Guardian newspaper reported Monday.
Lead researcher Simon Baron-Cohen said there needs to be a debate over the consequences of testing for autism. Many people with autism have extraordinary abilities in mathematics and music.
"If there was a pre-natal test for autism, would this be desirable?" he said. "What would we lose if children with autistic spectrum disorder were eliminated from the population?"
Researchers from Cambridge's autism research center discovered the testosterone link after studying 235 children from birth to the age of 8. Children with high levels of testosterone before birth showed autistic traits such as a lack of sociability and verbal skills by the time they were 8, the newspaper said.
Cambridge University scientists say the testosterone levels were determined using amniotic fluid removed from pregnant mothers through amniocentesis, which is used to detect Down syndrome in unborn infants, the Guardian newspaper reported Monday.
Lead researcher Simon Baron-Cohen said there needs to be a debate over the consequences of testing for autism. Many people with autism have extraordinary abilities in mathematics and music.
"If there was a pre-natal test for autism, would this be desirable?" he said. "What would we lose if children with autistic spectrum disorder were eliminated from the population?"
Researchers from Cambridge's autism research center discovered the testosterone link after studying 235 children from birth to the age of 8. Children with high levels of testosterone before birth showed autistic traits such as a lack of sociability and verbal skills by the time they were 8, the newspaper said.
Animated series helped children with autism recognize emotions: study
SASKATCHEWAN (CBC) - Some children with autism showed significant improvements in recognizing and understanding emotion after viewing an animated series created by British autism researchers, a new study indicates.
In an article published in the Journal of Autism and Developmental Disorders, researchers describe their study of 20 high-functioning children with autism age 4 to 7.
Over four weeks, the children watched at least three episodes of an animated series created for autistic children called The Transporters. The series, developped by the Autism Research Centre at Cambridge University in conjunction with the U.K. government, features computer-animated trains, trolleys, ferries and cable cars with the faces of real-life actors expressing emotions.
"The children with autism who'd watched the DVD not only improved on recognizing [emotion on] faces … they'd seen before but even on new faces," said study author Prof. Simon Baron Cohen, director of Cambridge centre.
"So, this suggested they hadn't just mimicked. They'd actually learned the concepts and could apply them in novel ways," added Baron Cohen, who helped to develop the DVD.
Jo-Lynn Fenton of Halifax has been waiting for The Transporters to be released in Canada for the past two years. She hopes the series will help her son, Rhys, who has autism, which makes it difficult for him to recognize and communicate emotion.
"He can identify the emotions, but he can't always put the emotions in the right context," she said.
Each short episode focuses on a specific emotion and the facial cues associated with it. After each episode, there is an interactive quiz.
Children with autism who watched the DVD for 15 minutes a day over a one-month period caught up with other children in their ability to recognize emotions, said Baron Cohen, unlike children who did not watch the series.
More research is needed to look at how long the effects may last and whether the benefits apply to all children in the autism spectrum.
The DVD will be ideal for young children with good language skills, but there is a drawback, said Dr. Susan Bryson, an autism expert at IWK Health Centre in Halifax.
"For a lot of children, what's particularly difficult is picking up emotion in faces when it’s a little more subtle, not so exaggerated," said Bryson. "But this is probably a good starting point."
The British research team isn’t making a profit from the DVD — 25 per cent of the proceeds will go to autism charities, and the rest will be used to make more episodes.
The Transporters series sells online for about $60 and is available in North America as of this week.
In an article published in the Journal of Autism and Developmental Disorders, researchers describe their study of 20 high-functioning children with autism age 4 to 7.
Over four weeks, the children watched at least three episodes of an animated series created for autistic children called The Transporters. The series, developped by the Autism Research Centre at Cambridge University in conjunction with the U.K. government, features computer-animated trains, trolleys, ferries and cable cars with the faces of real-life actors expressing emotions.
"The children with autism who'd watched the DVD not only improved on recognizing [emotion on] faces … they'd seen before but even on new faces," said study author Prof. Simon Baron Cohen, director of Cambridge centre.
"So, this suggested they hadn't just mimicked. They'd actually learned the concepts and could apply them in novel ways," added Baron Cohen, who helped to develop the DVD.
Jo-Lynn Fenton of Halifax has been waiting for The Transporters to be released in Canada for the past two years. She hopes the series will help her son, Rhys, who has autism, which makes it difficult for him to recognize and communicate emotion.
"He can identify the emotions, but he can't always put the emotions in the right context," she said.
Each short episode focuses on a specific emotion and the facial cues associated with it. After each episode, there is an interactive quiz.
Children with autism who watched the DVD for 15 minutes a day over a one-month period caught up with other children in their ability to recognize emotions, said Baron Cohen, unlike children who did not watch the series.
More research is needed to look at how long the effects may last and whether the benefits apply to all children in the autism spectrum.
The DVD will be ideal for young children with good language skills, but there is a drawback, said Dr. Susan Bryson, an autism expert at IWK Health Centre in Halifax.
"For a lot of children, what's particularly difficult is picking up emotion in faces when it’s a little more subtle, not so exaggerated," said Bryson. "But this is probably a good starting point."
The British research team isn’t making a profit from the DVD — 25 per cent of the proceeds will go to autism charities, and the rest will be used to make more episodes.
The Transporters series sells online for about $60 and is available in North America as of this week.
Friday, November 14, 2008
A Precious Child's Different Journey
"You still have a great kid, but you're on a different journey. You'll dream a different dream for your child, not a bad one, just different." Those are the words a mother longs to hear from her physician once she discovers her child has autism. These children have "different brains and different abilities" and they have the capacity to teach each of us a new skill, as they make this world a better place.
This is a mother's journey as she realizes something is different in her child. When the child does not respond to her name, the family seeks medical help. First, the 18 month old has a hearing test with normal results. With concern, the parents visit the doctor at three years of age and hear the soothing advice, "give the child more time." Deep down both mother and father feel something is not right, but cling to hope that their sweet child will be okay. By the age of five, this child attends preschool. During spring conference, the teachers share somber concerns. "Your child," the teacher explains gently, "has abnormal speech prosody - tone of voice. She plays alone with little interest in other children and talks mostly in memorized movie scripts, not flowing conversation. An evaluation with Child Find can help," suggests the caring teacher. Acknowledging a problem in your child is painful for any parent. However, when someone clearly communicates that a problem exists, the parents eagerly seek help. These grateful parents recall, "Knowledgeable, preschool staff made a tremendous difference in getting our child timely help."
In their search for answers, the parents read, study, and ask questions of many health and educational experts, as well as other parents. One evening, the father stumbles upon answers that bring hollow relief and overwhelming anxiety. As he studies information about Asperger Syndrome, an autism spectrum disorder first described in 1944, this father faces the harsh reality that his child shows 14 of the 20 signs.
With new information, both parents realize the only way to truly help their precious child is to grant permission for health and educational professionals to say the "A" word, AUTISM. This family now treads on a mysterious path. However, by facing autism, the family partners with health and educational experts to work collaboratively in the child's best interest. Finally, the mother, father, and especially the lovely child are no longer alone on their journey.
Looking back, the parents' greatest regret is they did not desperately seek help sooner for their child simply because they did not understand. Therefore, crucial early intervention time was lost. "It is so important for everyone caring for children to know the signs of autism and help families get the earliest diagnosis and treatment possible. All kids with Autism can make progress and the earlier they get help the better their chances are," advise these parents who navigate autism's path.
In the US today, autism spectrum disorders (ASD) affect 1 in every 150 children who are eight years old and are increasing at alarming rates. According to the Center for Disease Control and Prevention (CDC), "Between 1994 and 2006, the number of 6 to 17-year-old children classified as having an ASD in public special education programs increased from 22,664 to 211,610." These disorders are more common in children than diabetes, spinal bifida and even Down's syndrome.
Children with autism spectrum disorders have a problem in the brain that leads to
developmental challenges. These children may interact, communicate, behave and learn differently than others and have symptoms that vary from mild to severe. ASD children possess thinking and learning abilities that vary from gifted to severely challenged. The most familiar type of ASD is autistic disorder but others include "pervasive developmental disorder-not otherwise specified" and Asperger Syndrome.
Children with autism spectrum disorders do not follow regular patterns of child development. In many cases, parents accurately notice that something is different, but find it difficult to explain and understand what is happening to the child. Even childcare providers and preschool teachers often identify unusual behaviors, but sometimes are uncertain what to do with these observations.
Today health experts agree that early recognition and intervention with behavioral therapies for children with ASD leads to amazing results. ASD can be recognized as early as 18 months and some developmental delays are seen in infancy. Seeking help from health care professionals and organizations like Child Find make a huge impact on the child's progress and success.
This is a mother's journey as she realizes something is different in her child. When the child does not respond to her name, the family seeks medical help. First, the 18 month old has a hearing test with normal results. With concern, the parents visit the doctor at three years of age and hear the soothing advice, "give the child more time." Deep down both mother and father feel something is not right, but cling to hope that their sweet child will be okay. By the age of five, this child attends preschool. During spring conference, the teachers share somber concerns. "Your child," the teacher explains gently, "has abnormal speech prosody - tone of voice. She plays alone with little interest in other children and talks mostly in memorized movie scripts, not flowing conversation. An evaluation with Child Find can help," suggests the caring teacher. Acknowledging a problem in your child is painful for any parent. However, when someone clearly communicates that a problem exists, the parents eagerly seek help. These grateful parents recall, "Knowledgeable, preschool staff made a tremendous difference in getting our child timely help."
In their search for answers, the parents read, study, and ask questions of many health and educational experts, as well as other parents. One evening, the father stumbles upon answers that bring hollow relief and overwhelming anxiety. As he studies information about Asperger Syndrome, an autism spectrum disorder first described in 1944, this father faces the harsh reality that his child shows 14 of the 20 signs.
With new information, both parents realize the only way to truly help their precious child is to grant permission for health and educational professionals to say the "A" word, AUTISM. This family now treads on a mysterious path. However, by facing autism, the family partners with health and educational experts to work collaboratively in the child's best interest. Finally, the mother, father, and especially the lovely child are no longer alone on their journey.
Looking back, the parents' greatest regret is they did not desperately seek help sooner for their child simply because they did not understand. Therefore, crucial early intervention time was lost. "It is so important for everyone caring for children to know the signs of autism and help families get the earliest diagnosis and treatment possible. All kids with Autism can make progress and the earlier they get help the better their chances are," advise these parents who navigate autism's path.
In the US today, autism spectrum disorders (ASD) affect 1 in every 150 children who are eight years old and are increasing at alarming rates. According to the Center for Disease Control and Prevention (CDC), "Between 1994 and 2006, the number of 6 to 17-year-old children classified as having an ASD in public special education programs increased from 22,664 to 211,610." These disorders are more common in children than diabetes, spinal bifida and even Down's syndrome.
Children with autism spectrum disorders have a problem in the brain that leads to
developmental challenges. These children may interact, communicate, behave and learn differently than others and have symptoms that vary from mild to severe. ASD children possess thinking and learning abilities that vary from gifted to severely challenged. The most familiar type of ASD is autistic disorder but others include "pervasive developmental disorder-not otherwise specified" and Asperger Syndrome.
Children with autism spectrum disorders do not follow regular patterns of child development. In many cases, parents accurately notice that something is different, but find it difficult to explain and understand what is happening to the child. Even childcare providers and preschool teachers often identify unusual behaviors, but sometimes are uncertain what to do with these observations.
Today health experts agree that early recognition and intervention with behavioral therapies for children with ASD leads to amazing results. ASD can be recognized as early as 18 months and some developmental delays are seen in infancy. Seeking help from health care professionals and organizations like Child Find make a huge impact on the child's progress and success.
Subscribe to:
Posts (Atom)